If you have been a long-time reader, you know that I am constantly fighting a battle against unexplained fatigue. No matter how much sleep I get each night, I wake up feeling unrefreshed and unprepared to tackle the day.
Doctors have misdiagnosed me with narcolepsy. I've seen neurologists who have suspected M.S. My primary care doctor has screened me for anemia, Lyme disease, thyroid disease, and treated me for a B12 deficiency. No luck.
After feeling like I've been given up on, I took matters into my own hands and scheduled an appointment with an endocrinologist. (Why my doctor never suggested this to me years ago, I have no idea.)
Last week, after waiting three months for an appointment, I finally saw the endocrinologist. She studied my previous blood work and medical history. She told me she suspected I had one of two things. One thing--Congenital Adrenal Hyperplasia-- would explain the fatigue. The other--Polycystic Ovarian Syndrome--would not.
She ordered the appropriate blood work that was needed for a diagnosis. I crossed my fingers that this was it. This would finally give me an answer I've been waiting for for ten years.
The blood test results are in. I have Polycystic Ovarian Syndrome, or PCOS. I am really disappointed that my fatigue remains a medical mystery. Actually, "devastated" is the word I would like to use--but I'm afraid it's a little too dramatic for some people. I know people are going through much worse. But I can't help but shed a few tears today in frustration for what I guess could be a lifetime of unexplained exhaustion.
I guess there is still a chance that the PCOS is causing the fatigue... but my endocrinologist does not think so. She was pretty quick to rush me off the phone when she called with my results. I need to see her "in three months if I wish to discuss in detail." Great. I seem to be the only one in a hurry to get this all figured out. It is INCREDIBLY frustrating.
The icing on the cake is that PCOS is linked to infertility issues. As someone who wants to be a mother one day, that's something I cannot even wrap my head around just yet.
To treat PCOS, my endocrinologist suggested that I go back on birth control pills. I stopped them four months ago to see if my fatigue lessened at all off Yasmin (actually the generic: Ocella), a pill which I've heard terrible things about. Not sure which pill I will try next. Waiting to consult my gynecologist before I start taking the one my endocrinologist recommended.
That Explains Everything.
It's not all flowers, squirrels, and gingerbread...
Dear Doctor, Fix Me